In loving memory of my good friend,
December 18, 2001 - June 2, 2020
ABOUT THE FOUNDER
My name is Amanda Solomiany and I am currently 19 years old from Atlanta, Georgia, studying public policy at the University of Michigan. I was diagnosed with osteosarcoma in my right distal femur at the age of 16 on December 3rd, 2019. Upon beginning chemotherapy, I was shocked to discover that the standard treatment for osteosarcoma, MAP, has not been refined since the early 1980s. It is labeled as an "ancient disease" that is still misunderstood to this day. As a fighter myself, I became devoted to promote osteosarcoma's prevalence and cruciality in the world, especially in children and adolescents, and aim for a change in the current approach to this deadly disease.
I created The Osteosarcoma Society to spread awareness of osteosarcoma: the most common form of bone cancer in children and adolescents. My hope is to collect donations that will be directed towards funding more expansive research for the disease. It exists as the eighth most common childhood cancer and affects nearly 400 people under the age of 20 each year. While osteosarcoma is not as well known compared to other types of cancers, it is just as important and deserves to be recognized and acknowledged for changes to be made in its treatment regimen that will benefit future generations.
FEATURED INTERVIEWS AND ARTICLES
OSTEOSARCOMA SURVIVOR AMANDA SOLOMIANY INTERVIEW BY RUBY KAUFMAN
October 25, 2020
In this CureFest TV exclusive, osteosarcoma survivor Amanda Solomiany is interviewed by childhood cancer survivor Ruby Kaufman.
CHECK OUT THE CLOUDS MOVIE ON DISNEY+
October 15, 2020
"This tear-jerking biopic looks back at the life of Zach Sobiech, a teenage musician who died of a rare bone cancer in 2013." - Amy Nicholson, The NY Times